What kind of support would be required by parents raising a seriously ill child?

Our parents appreciate the opportunity to meet, learn new information, have time for themselves and their loved ones. They appreciate life’s little gifts.

Our parents would appreciate any kind of support that would give them the opportunity to:

Meet – you could help organise events, camps, hiking trips, musical, cinema or theatre events

Free up time for themselves and their loved ones – give a babysitter https://www.ziedot.lv/auklite-svarigiem-dzives-mirkliem-3945; professionals or companies could donate services to pamper mums and dads, brothers and sisters; leisure facilities could give parents an opportunity to relax.

Learn – speakers and organisers of lectures are welcome to collaborate to create meaningful and engaging content for families, the team and society at large.

What kind of support/assistance has been most useful to the families?

Definitely, a sense of security when they know the Children’s Palliative Care Team is by your side, available all year round, at any time of the day or night. Being together – https://www.youtube.com/watch?v=yfLgWudoj8M&t=74s

Support groups for parents and siblings. Peer support, attitude in everyday life – https://www.youtube.com/watch?v=qwh1FQqdiS8

How to support parents who are busy with providing care 24 h?

It requires a lot of resources from parents. We can certainly support parents in their everyday life – by talking, being together, sometimes just by being silent and hearing what Mum or Dad needs most at that moment. Conversations, being together, financial support in the form of donations to meet a specific need, activities that build strength, the attitude of peers, government support and many other things make up what we at the children’s palliative care call ‘Duka’ (energy, strength)!